Parents of PWNs (Persons with Narcolepsy)
Meeting Details
Start Time:
Parents of PWNs (Persons with Narcolepsy)
Description
Parents face many challenges when caring for a child with narcolepsy. No one understands better than another parent. Join us to discuss your challenges and celebrate your successes. Meetings will cover topics from selfcare, medication, school, relationships, work, driving, insurance, or anything that is on your mind.
Wake Up Narcolepsy is a 501(c)(3) not-for-profit organization dedicated to advancing the knowledge of Narcolepsy to find a cure, as we strengthen families and individuals.
WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome.
WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1 million in research funds to institutions across the US including Stanford U, Harvard, Boston Children's, Northwestern, Vanderbilt and more.
Thank you to our sponsors for making these groups possible: Avadel, Harmony Biosciences, Jazz Pharmaceuticals, Paladin Labs, Takeda.