Parenting Cystinosis Support Group

Hosted by: kerryheckman
Meeting Details
Start Time:
Category: parenting
Topic: parenting, cystinosis, chronic illness, rare disease

Parenting Cystinosis Support Group


The Parenting Cystinosis Support Group is a group for parents who have children living with the rare disease, cystinosis. Parents of children of any age are welcome. Background activity of busy families is welcome. The group meets on the 3rd Tuesday of every other month from 2:30-3:30pm PST (September 21st and November 16th 2021) and is facilitated by clinical social worker, Kerry Heckman, MSW, LICSW.

Center for Chronic Illness

The Center for Chronic Illness (CCI) is a 501(c)3 nonprofit organization promoting well-being and decreasing isolation for those impacted by ongoing health challenges through support and education. CCI offers free, peer support groups facilitated by licensed mental health professionals and Master's level mental health interns. CCI's programs are designed to bring people together who live with different types of health challenges and diagnoses, recognizing the shared emotional experience of many who are impacted by chronic illness. Please note, because we are a Seattle-based organization, all support groups are scheduled on Pacific Standard Time (PST).

The Center for Chronic Illness provides support and education for those impacted by ongoing health challenges through our professionally-facilitated peer support groups. Although the information and support provided can be psycho-educational in nature, our support groups are not counseling or therapy groups, and we are not providing healthcare services. You should not use the information contained herein for diagnosing or treating any health condition. Participation in our facilitated peer support groups does not create a psychotherapist/patient relationship. You should always consult with a doctor and / or other health care professional for medical advice or information about diagnosis and treatment. If you are in a need of immediate medical attention or crisis support, please call 9-1-1 or the National Suicide Hotline at 1-(800) 273-8255 without delay.

To learn more about the Center for Chronic Illness, visit our website at or contact us with questions at or (425) 296-2705.

While are programs are offered free of cost, we reply on donations from members in our community to be able to provide these services. If you are able, please consider making a contribution.

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