02:30 PM PST
Parenting Cystinosis Support Group
Center for Chronic Illness
Topic: The Parenting Cystinosis Support Group is a group for parents who have children living with the rare disease, cystinosis. Parents of children of any age are welcome. Background activity of busy families is welcome. The group meets on the 3rd Tuesday of every other month from 2:30-3:30pm PST (July 20th, September 21st, and November 16th 2021) and is facilitated by clinical social worker, Kerry Heckman, MSW, LICSW.