Shwachman-Diamond Syndrome Alliance

Our Vision: To cure SDS To Cure SDS means that all SDS patients will have access to effective treatments to prevent or treat all SDS complications, including leukemia and organ failure, to enable a long and healthy life.

Our Mission: To accelerate research and translation into therapies and cures; to deactivate the SDS ticking time bomb. build a research-ready global patient COMMUNITY through education, connection, and a global platform to capture patient input develop a RESEARCH ROAD MAP and jump-start key projects and collaborations provide researchers access to critical RESEARCH TOOLS (cell lines, animal models, data, etc) expand patient access to DIAGNOSTICS and expert MEDICAL CARE

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Shwachman-Diamond Syndrome Alliance
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