Sleep

Living with Narcolepsy

Hosted By
Matthew H.
Wednesday, Nov 22, 2023 | 07:00pm - 08:00pm EST
Free
10 seats remaining
Zoom
About this meeting
The living with Narcolepsy group is an open drop-in for adults affected by Narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.
Hosts
  • Host

    Matthew H.

    group leader image
  • Co-host

    Shelly G.

    group leader image
  • 2nd Co-host

    Tianna B.

    Peer Supporter

    Certified Peer Supporter

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The host has not provided any information about themselves.
Recent reviews
Kelsey ran the meeting. It was a small group but they were all very helpful in giving advise, sending info to look into, and just explaining there experiences.
May 11, 2024
I was late so joined about 40 mins in. My first meeting. He seemed to have some good info. I think if I come to a couple more of these I'll get something good out of them.
May 02, 2024
Matt’s awesome and I love him and Vanessa hosting together 🥰
Apr 04, 2024
He was great. I do think he went on too long about the meds and accommodations. It's great that he knows and wants to share so much, but when we only have an hour, maybe his responses should be reigned some.
Jan 27, 2024
We are so lucky to have a caring group leader with so much knowledge.
Nov 25, 2023
Kelsey was warm and inviting, as always. She makes sure that everyone gets a chance to speak and feels heard.
Sep 16, 2023
Matt always has a wealth of knowledge to share with the group. His compassion for others is apparent. He is simply the best!
Aug 26, 2023
Thank you for creating a safe, caring place to share!
Aug 05, 2023
Matt is always exceptional and provide excellent sources of information, especially for newcomers.
Aug 05, 2023
Registration Closed
Attendees (10)
kj-is-sleepy eldridgesm2 amys27 sleepysmurf Kiannano Stephen rjrubin cgtesreau Meryl nancyvbrown
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony BiosciencesTakeda.