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Living with Narcolepsy

Hosted By
Matthew H.
Saturday, Nov 25, 2023 | 01:30pm - 02:30pm EST
Free
12 seats remaining
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About this meeting
The living with Narcolepsy group is an open drop-in for adults affected by Narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.
Hosts

  • Host

    Matthew H.

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  • Co-host

    Kelsey B.

    group leader image

  • 2nd Co-host

    Tianna B.

    Peer Supporter

    Certified Peer Supporter

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Recent reviews
We are so lucky to have a caring group leader with so much knowledge.
Nov 25, 2023
Kelsey was warm and inviting, as always. She makes sure that everyone gets a chance to speak and feels heard.
Sep 16, 2023
Matt always has a wealth of knowledge to share with the group. His compassion for others is apparent. He is simply the best!
Aug 26, 2023
Thank you for creating a safe, caring place to share!
Aug 05, 2023
Matt is always exceptional and provide excellent sources of information, especially for newcomers.
Aug 05, 2023
The chat function wouldn't work
Jul 02, 2022
See reply to prior question. Participants' responses your survey are meaningless for your research unless they use the scale consistently!
Jun 25, 2022
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Jun 25, 2022
Thank you for providing this amazing service!
Jun 18, 2022
Registration Closed
Attendees (8)
Kimberly kj-is-sleepy ravlaurie DT Abelzilla SuzanneBori Stephen Meryl
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to advancing the knowledge of Narcolepsy to find a cure, as we strengthen families and individuals.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach.  Since inception in 2008, WUN has donated over $1 million in research funds to institutions across the US including Stanford U, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Avadel, Harmony Biosciences, Jazz Pharmaceuticals, Paladin Labs and Takeda.