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Parents and Partners of PWNs (Persons with Narcolepsy)
Hosted By
Tracy V.
Monday, Nov 23, 2026 | 08:15pm - 09:15pm EST
Free
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About this meeting
Parents face many challenges when caring for a child with narcolepsy. No one understands better than another parent. Join us to discuss your challenges and celebrate your successes. Meetings will cover topics from selfcare, medication, school, relationships, work, driving, insurance, or anything that is on your mind.
Hosts
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Host
Tracy V.
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Co-host
Diana B.
Peer SupporterCertified Peer Supporter
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2nd Co-host
Mary Beth G.
About the host
I learned 5 years ago that I was the parent of a Person with Narcolepsy (PWN). Since then, I have also learned all the things I did wrong as a parent in terms of truly understanding what my son (now 30) was going through. Lazy, addicted, combative etc ... are all terms I used to think about him and accused him of.
Since then, I have made it my mission to better understand Narcolepsy and learn from PWN and medical professionals about their lived experiences and the state and future of treatment options for PWN.
I've been coaching in various forms (corporately and privately) for 25 + years, and my goal now is to help other caregivers who are supporting their loved one with Narcolepsy to do so with increased knowledge and grace for their PWN and for themselves.
I hope to create a safe space for caregivers to share their worries, frustrations and wisdom with a little humour along the way.
I look forward to meeting you.
Other Meetings in This Series
Parents and Partners of PWNs (Persons with Narcolepsy)
Monday, October 19
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Monday, November 02
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Monday, November 09
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Monday, December 07
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35 days away
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Wake Up Narcolepsy (WUN) is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.
WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. Our groups are offered as an additional resource to find support through community and should not be treated as a replacement for professional therapy or other mental health services. By participating in our online support groups, you are acknowledging and agreeing to our Online Support Group Release of Liability.
WUN accepts donations to accelerate Narcolepsy research. Since inception in 2008, WUN has donated over $1.6 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.
Thank you to our sponsors for making these groups possible: Takeda Pharmaceuticals, Alkermes, Jazz Pharmaceuticals and Centessa Pharmaceuticals.