Parenting

Pregnancy and Parenting with Narcolepsy

Hosted By
Emily B.
Tuesday, Mar 19, 2024 | 08:00pm - 09:00pm EDT
Free
17 seats remaining
Zoom
About this meeting
In this group, women with Narcolepsy are offered support through pregnancy and parenting young children. Our expert facilitators all have Narcolepsy and have experienced pregnancy, childbirth, breast feeding and raising young children. The meetings allow participants to ask questions and share experiences related to all aspects of this particularly challenging time of life.
Hosts
  • Host

    Emily B.

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  • Co-host

    Diana B.

    Peer Supporter

    Certified Peer Supporter

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About the host
Emily is originally from Utah and now lives in Cleveland, Ohio. She has lived with narcolepsy with cataplexy for 15 years and is the mom of 3 boys (ages 10, 8, and 3). After struggling to identify support and direction on her journey of pregnancy and childbearing with narcolepsy, Emily sought opportunities to offer more resources and encouragement to women on a similar path. Since 2019, she has deeply enjoyed connecting with other women as a facilitator for the Wake up Narcolepsy Pregnancy and Parenting with Narcolepsy peer support group. Emily is also a scientist and a medical writer and has performed research in medication use during lactation with narcolepsy. Emily also enjoys family history research, camping, bicycling, and playing sports with her kids.
Recent reviews
It was good. OK to end a few minutes early once in a while.
Jul 20, 2022
it was wonderful so helpful and encouraging!
Jun 01, 2022
Very fun, friendly, welcoming. Will go again.
May 18, 2022
The meeting was run in a professional yet casual manner. I felt very welcomed right away. Participants (and facilitators) made meaningful contributions. Everyone seemed to really listen to and respect one another. I really liked that it is more focused on pregnancy, parenting, etc. I've been attending a different virtual narcolepsy support group meeting (through Narcolepsy Network), but find that it can sometimes cover too much of a range of topics each time. Someone at that meeting last week recommended this one to me.
Mar 23, 2022
Registration Closed
Attendees (3)
HYEAGER BuckeyeKt Paytlaf
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony BiosciencesTakeda.