Living with Narcolepsy

Hosted By
Lisa R.
Wednesday, May 29, 2024 | 10:00pm - 11:00pm EDT
17 seats remaining
About this meeting
The living with Narcolepsy group is an open drop-in for adults affected by narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform. This group is scheduled at a later hour for those on the West Coast.
  • Host

    Lisa R.

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  • Co-host

    Tim L.

    Peer Supporter

    Certified Peer Supporter

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  • 2nd Co-host

    Kelsey B.

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About the host
Hey! My name is Lisa Rose and I've been diagnosed with Narcolepsy Type 2 (no cataplexy) since 2011 but I've been experiencing symptoms my whole life. Born and raised in California, I studied accounting at Santa Clara University and met my husband while working at one of the Big 4 accounting firms after graduation. I currently live in the Bay Area with my husband, son, and kitten Sugar who frequently likes to crash my video calls.
Recent reviews
She did a great job leading the group and shared very helpful information for me relating to narcolepsy related resources.
Jul 20, 2023
I arrived about 15 minutes late. The leader did not acnowledge my presence --and neither did anyone else. Very rude
May 11, 2023
This was more of a sharing and chatting meeting. But that was nice
Sep 02, 2021
Other Meetings in This Series
Registration Closed
Attendees (3)
AdrianWindSpirit Kay Shegrizz
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony BiosciencesTakeda.