Sleep

Living with Narcolepsy

Hosted By
Jenny R.
Saturday, Jun 22, 2024 | 01:30pm - 02:30pm EDT
Free
9 seats remaining
Zoom
About this meeting
The living with Narcolepsy group is an open drop-in for adults affected by Narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.
Hosts
  • Host

    Jenny R.

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  • Co-host

    Lori H.

    Peer Supporter

    State Certified Peer Supporter

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  • 2nd Co-host

    Kelsey B.

    group leader image

About the host
Hello! I am the Peer Support Group Coordinator for Wake Up Narcolepsy, and we are always looking for ways to improve the supports you need! My daughter, now 12, was diagnosed with Type 2 Narcolepsy when she was 8 years old. I was completely unprepared for the diagnosis and had so many questions. Desperately looking for answers and support, I wandered upon Wake Up Narcolepsy's website where I found a wealth of great information. Since then, I have made connections across the nation that have proven to be invaluable for learning how to navigate this condition. The support I have found within the support groups is allowing me to be a better advocate for my daughter and provide answers and ideas to the questions we both have. I hope you find the same. Join meetings weekly or as your schedule allows. We appreciate feedback and hope you will share ideas for improving upon what we have. Thank you for joining us! We look forward to getting to know you!
Recent reviews
Very Friendly and nice. Told us about herself and situation. It was a really good group of people to get to converse with.
May 07, 2024
Registration Closed
Attendees (11)
Rblak2525 stephaniemerc947 Meryl Stephen Patricia Jeron emilybuc95 lilahemily Swayne01 ivycoleman14 BrianHope
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony BiosciencesTakeda.