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Living with Narcolepsy - Comorbidities

Hosted By
Rorey S.
Monday, Dec 16, 2024 | 07:00pm - 08:00pm EST
Free
18 seats remaining
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About this meeting
Navigating multiple medical diagnoses can be challenging! Living with Narcolepsy- Comorbidities is a unique group for individuals that experience the daily management of multiple health diagnoses along with Narcolepsy. The group is an open drop-in for adults living with Narcolepsy and at least one other chronic condition that affects daily life or function. The group offers weekly support based on participant needs as they arise. Led by people directly affected by multiple chronic conditions, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWNs, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform.
Hosts

  • Host

    Rorey S.

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  • Co-host

    Liliana P.

    Peer Supporter

    State Certified Peer Supporter

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About the host
I pride myself on being authentic, an active listener, and a compassionate confidant. I have multiple chronic conditions that have taught me how to be a better version of myself and to share what I have learned in my journey with others. It can be an amazing experience if you open yourself up to the possibilities.
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Attendees (2)
BrianHope rjrubin
Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony Biosciences & Takeda.