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Living with Narcolepsy

Hosted By
Lisa R.
Wednesday, Dec 18, 2024 | 10:00pm - 11:00pm EST
Free
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About this meeting
The living with Narcolepsy group is an open drop-in for adults affected by narcolepsy. The group offers weekly support based on participant needs as they arise while navigating life with Narcolepsy. Led by people directly affected by the condition, this is an ideal group to bring your current concerns and challenges to. While the focus is towards PWN, care-givers, parents and spouses are also warmly invited to participate within the peer to peer platform. This group is scheduled at a later hour for those on the West Coast.
Hosts

  • Host

    Lisa R.

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  • Co-host

    Tim L.

    Peer Supporter

    Certified Peer Supporter

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  • 2nd Co-host

    Anne S.

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About the host
Hey! My name is Lisa Rose and I've been diagnosed with Narcolepsy Type 2 (no cataplexy) since 2011 but I've been experiencing symptoms my whole life. Born and raised in California, I studied accounting at Santa Clara University and met my husband while working at one of the Big 4 accounting firms after graduation. I currently live in the Bay Area with my husband, son, and kitten Sugar who frequently likes to crash my video calls.
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Wake Up Narcolepsy logo
Wake Up Narcolepsy

Wake Up Narcolepsy is a 501(c)(3) nonprofit organization dedicated to driving Narcolepsy awareness, education and research toward improved treatments and a cure.

WUN offers free, targeted online support groups to individuals with Narcolepsy and their families, worldwide. Our programs are designed to bring together individuals who have been affected by the diagnosis of Narcolepsy and provide the support and community necessary to thrive. Individuals with Idiopathic Hypersomnia welcome. 

WUN accepts donations to accelerate Narcolepsy reseach. Since inception in 2008, WUN has donated over $1.35 million in research funds to institutions across the US including Stanford University, Harvard, Boston Children's, Northwestern, Vanderbilt and more.

Thank you to our sponsors for making these groups possible: Jazz Pharmaceuticals, Avadel, Harmony Biosciences & Takeda.